Rare Disorders: Research, Surveillance, Health Promotion, and Education
Department Of Health And Human Services, Centers For Disease Control And Prevention
To (1) Promote public health capacity by conducting research to expand the knowledge base around people with complex disabling conditions, including muscular dystrophy, fragile X syndrome and spina bifida across the lifespan, with the goal of improving their health and quality of life; (2) apply lessons learned to design public health approaches for other childhood onset complex disabling conditions; (3) develop and disseminate information from surveillance and epidemiologic research, identifyi
Jargon-free version
Helps organizations improve health care for people with complex disabilities. Provides support for research, education, and early identification of these conditions.
Quick Facts
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What Is This Program?
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Browse Partner Directory🏆 Detailed Application Guide
📋What Are the Application Steps & Timeline?
- 📝Steps to Apply
- Visit the application portal
- Complete the application form
- Submit the application
- 🌐Application Portal
- https://sam.gov/fal/67d1ee597e0a4a47b533704ad383c617/view
- 📤Submission Method
- online
- 🔄Intake Type
- fixed-deadline
📄What Documents Are Required?
- ✅Required Documents
- SF-424 (Application for Federal Assistance)
- SF-424A (Budget Information - Non-Construction)
- SF-424B (Assurances)
- Project Narrative
- Budget Narrative
- indirect cost rate agreement
- IRB approval letter
- environmental review
- 📐Format Requirements
- PDF only, max 10MB
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💰What Expenses Are Eligible?
- 🧾Eligible Expenses
- research costs
- surveillance activities
- health promotion initiatives
- educational programs
- 🚫Ineligible Expenses
- luxury items
- entertainment expenses
- fines and penalties
- 📏Expense Caps
- Indirect costs limited to de minimis 10% MTDC
- 💳Payment Model
- reimbursement
- ⏪Retroactive Expenses Eligible
- No
🤝Is Matching Funding Required?
📊What Are the Reporting Requirements?
- 🗓️Reporting Frequency
- annual
- 📑Reporting Requirements
- SF-425 Federal Financial Report
- performance progress report
- 🔍Audit Requirements
- OMB Uniform Guidance Single Audit if the recipient expends $750,000 or more in federal awards.
- 📢Branding Requirements
- Acknowledgment of federal funding is required.
- 🗄️Record Retention Period
- 3 years post-final-report
How Do I Apply?
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FAQFrequently Asked Questions
Visit the program page for detailed eligibility requirements.
This program offers funding up to $1,794,923 (minimum $1,794,463).
This program accepts applications on a rolling basis.
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